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1.
Child Dev ; 91(6): e1211-e1230, 2020 11.
Artigo em Inglês | MEDLINE | ID: mdl-32745250

RESUMO

This longitudinal study investigated the effects of maternal emotional health concerns, on infants' home language environment, vocalization quantity, and expressive language skills. Mothers and their infants (at 6 and 12 months; 21 mothers with depression and or anxiety and 21 controls) provided day-long home-language recordings. Compared with controls, risk group recordings contained fewer mother-infant conversational turns and infant vocalizations, but daily number of adult word counts showed no group difference. Furthermore, conversational turns and infant vocalizations were stronger predictors of infants' 18-month vocabulary size than depression and anxiety measures. However, anxiety levels moderated the effect of conversational turns on vocabulary size. These results suggest that variability in mothers' emotional health influences infants' language environment and later language ability.


Assuntos
Ansiedade , Linguagem Infantil , Filho de Pais Incapacitados , Depressão Pós-Parto , Relações Mãe-Filho , Adulto , Desenvolvimento Infantil/fisiologia , Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Comunicação , Depressão , Feminino , Humanos , Lactente , Recém-Nascido , Desenvolvimento da Linguagem , Estudos Longitudinais , Masculino , Relações Mãe-Filho/psicologia , Mães/psicologia , Transtornos Puerperais , Vocabulário , Adulto Jovem
2.
Am J Community Psychol ; 62(1-2): 163-174, 2018 09.
Artigo em Inglês | MEDLINE | ID: mdl-29696660

RESUMO

Children of incarcerated parents (COIP) are at risk for a range of negative outcomes; however, participating in a mentoring relationship can be a promising intervention for these youth. This study examined the impact of mentoring and mentoring program enhancements on COIP. Secondary data analyses were conducted on an archival database consisting of 70,729 matches from 216 Big Brothers Big Sisters (BBBS) local agencies to establish the differential effects of mentoring on COIP. A subset of 45 BBBS agencies, representing 25,252 matches, participated in a telephone interview about program enhancements for better serving COIP. Results revealed that enhanced program practices, including having specific program goals, providing specialized mentor training, and receiving additional funding resulted in better outcomes for COIP matches. Specifically, specialized mentor training and receiving additional funding for serving matches containing COIP were associated with longer and stronger matches. Having specific goals for serving COIP was associated with higher educational expectations in COIP. Results are discussed in terms of benefits of a relationship-based intervention for addressing the needs of COIP and suggestions for program improvements when mentoring programs are serving this unique population of youth.


Assuntos
Filho de Pais Incapacitados/educação , Tutoria/métodos , Mentores/educação , Adulto , Idoso , Criança , Filho de Pais Incapacitados/psicologia , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Prisioneiros , Avaliação de Programas e Projetos de Saúde , Estados Unidos , Adulto Jovem
3.
Actas esp. psiquiatr ; 46(1): 21-28, ene.-feb. 2018. graf, tab
Artigo em Espanhol | IBECS | ID: ibc-172494

RESUMO

Introducción. En el Trastorno por Déficit de Atención e Hiperactividad (TDAH) se recomiendan tratamientos combinados con intervenciones psicoeducativas, farmacológicas y programas de entrenamiento para padres. Estos programas han demostrado eficacia en el ámbito experimental, pero existen pocos datos de efectividad y viabilidad en el ámbito profesional. El objetivo del estudio es analizar la efectividad de un programa para padres aplicado en ámbito hospitalario para mejorar las conductas internalizadas, externalizadas y los estilos de crianza en una muestra de niños con TDAH. Metodología. Se aplicó un programa de entrenamiento para manejo de conductas problema a los padres de 21 niños diagnosticados de TDAH en un diseño cuasi-experimental pre-post, utilizando medidas del Child Behavior Checklist (CBCL) y de la Parenting Scale. Resultados. Los datos mostraron mejoras postratamiento especialmente significativas en las medidas de problemas afectivos, de ansiedad y de negativismo desafiante, moderadas en TDAH e insignificantes en disocial. Por otra parte, hubo mejoras moderadas pero significativas en los estilos de crianza. Conclusiones. Los datos apoyan la eficacia y la viabilidad de los programas de entrenamiento de los padres para los niños con TDAH aplicados en entornos hospitalarios, ya que mejoran una gran parte de los síntomas asociados y los estilos de crianza (AU)


Introduction. Regarding the Attention Deficit Hyperactivity Disorder (ADHD), treatments combined with pharmacological, psychoeducational and parents training programs interventions are recommended. Parenting programs have been proven efficacy in the experimental area, but there is few data about their effectiveness and feasibility in the professional area. The objective of the study is to analyze the effectiveness of a parenting program implemented in a hospital setting to improve internalized and externalized behaviors as well as parenting styles in a sample of ADHD children. Methodology. A training program for behavior management was applied to parents of 21 children with ADHD in a quasi-experimental pretest-posttest design, using measures from Child Behavior Checklist (CBCL) and Parenting Scale. Results. Post-treatment data showed significant improvements specially on emotional, anxiety and oppositional defiant disorder measures. A significant but moderate improvement was found on ADHD, and non-significant on conduct problem measure. Additionally, there were moderate but significant improvements in parenting styles. Conclusions. Data support the effectiveness and feasibility of parent training programs for children with ADHD applied in hospital settings as they improve a large part of associated symptoms and parenting styles (AU)


Assuntos
Humanos , Masculino , Feminino , Criança , Adolescente , Transtorno do Deficit de Atenção com Hiperatividade/epidemiologia , Intervenção Educacional Precoce/métodos , Pais/educação , Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Avaliação de Eficácia-Efetividade de Intervenções , 34600 , Poder Familiar/psicologia , Comportamento Infantil/psicologia , Relações Pais-Filho
4.
Soc Work Health Care ; 57(1): 1-12, 2018 01.
Artigo em Inglês | MEDLINE | ID: mdl-28937930

RESUMO

Feasibility of a multidisciplinary caregiving training protocol for young caregivers in families with ALS. OBJECTIVES: To assess the feasibility of a multidisciplinary young caregiver group training protocol for children and youth who provide care to a family member with ALS. METHOD: Peer group experiential young caregiver model based on theories of self-management and self-efficacy. Training conducted by a multidisciplinary team of therapists in ALS (PT, OT, Speech and social work), as well as assistive device vendors. Demographic data, caregiving tasks and evaluations were collected. RESULTS: The model is feasible for both youth and therapists. Youth found benefit, skill acquisition, and mastery by asking questions, teaching back skills to the group and engaging with peers. CONCLUSION: This project demonstrates young caregivers will participate in training, and engage with "like" peer group. Future projects will focus on developing a structured survey and observation, testing efficacy in larger groups.


Assuntos
Esclerose Amiotrófica Lateral/terapia , Cuidadores/educação , Filho de Pais Incapacitados/educação , Família , Atividades Cotidianas , Adolescente , Fatores Etários , Criança , Estudos de Viabilidade , Humanos , Estudos Interdisciplinares , Modelos Educacionais
5.
Cancer Nurs ; 41(6): 473-483, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-28731883

RESUMO

BACKGROUND: Families living with parental cancer report lack of social support. The Cancer PEPSONE Program (CPP) was developed to bridge the gap between the families and their network. OBJECTIVE: The aims of this study were to study the effect of the CPP on children's anxiety and quality of life (QOL) and examine the association between the CPP's effect on their well parents' received social support, QOL, and psychological distress and the children's anxiety and QOL. METHODS: The CPP, a psychoeducational program for the families and their social network, was evaluated using a randomized controlled trial design. The children and their well parents completed questionnaires measuring QOL, psychological distress, and social support at baseline and after 3 and 6 months. RESULTS: Thirty-five families were enrolled (18 intervention, 17 controls). The CPP stabilized the children's family function, although the family function largely (d = 0.86) decreased in the control group (P = .018). No significant effects were found on anxiety, overall QOL, or QOL subdimensions. Significant correlations were documented between the children's levels of anxiety and the well parents' received social support (r = -0.196, P < .001), QOL (r = -0.138, P < .05), and psychological distress (r = 0.166, P < .05). CONCLUSIONS: The CPP seems to stabilize the children's perceived family function but did not target the other outcomes. Further studies with larger samples are needed. IMPLICATIONS FOR CLINICAL PRACTICE: Optimizing social network for families living with parental cancer may support the family's function. Actions should be initiated to increase the well parents' social support, QOL, and psychological distress, which may also benefit the children.


Assuntos
Ansiedade/prevenção & controle , Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Família/psicologia , Neoplasias/psicologia , Qualidade de Vida/psicologia , Apoio Social , Adolescente , Criança , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
6.
J Neurol ; 263(11): 2229-2237, 2016 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-27541043

RESUMO

Little is known about the impact of parental multiple sclerosis (MS) on offspring's educational attainment. The objective of the study was to examine educational achievements in offspring of parents with MS compared with matched children of parents without MS in a nationwide register-based cohort study. Children of all Danish-born residents with onset between 1950 and 1986 were identified by linking the Danish Multiple Sclerosis Registry with the Civil Registration System. Twins, children with MS, and emigrated persons were excluded. The reference cohort consisted of randomly drawn individuals from the Civil Registration System without parental MS matched 8:1 to the MS offspring by sex and year of birth. Information about education was linked to the cohorts from nationwide educational registries. We included 4177 children of MS parents and 33,416 reference persons. Children of MS parents achieved statistically significant higher average grades than the reference cohort in their final exam of basic school with a mean grade difference of 0.46 (95 % CI 0.22-0.69; p = 0.0002). We found no difference in achievement of educational level above basic school (OR 1.04; 95 % CI 0.98-1.10; p = 0.20). There was a trend toward more MS offspring attaining health-related educations (OR 1.10; 95 % CI 1.00-1.21; p = 0.06). In conclusion, children of MS parents showed a small advantage in grade point average in final examinations in basic school, and they more often tended toward health-related educations. This study revealed no negative consequences of parental MS on grades and highest educational level achieved.


Assuntos
Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Escolaridade , Esclerose Múltipla/psicologia , Pais/psicologia , Adulto , Distribuição por Idade , Fatores Etários , Estudos de Coortes , Dinamarca , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Probabilidade , Sistema de Registros , Distribuição por Sexo , Adulto Jovem
7.
J Health Econ ; 44: 161-75, 2015 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-26499960

RESUMO

This paper examines the impact of parental illness on children's education. We find that only father's illness decreases children's school attendance. Father's illness also has long-term impacts on child education, as it decreases children's likelihood of completing primary school and leads to fewer years of schooling. However, we find no evidence that father's illness affects schooling through increased child labor. Instead, father's illness decreases household's income and reduces school attendance possibly because of the reduced ability of the family to afford education. In contrast, mother's illness and illness of other household members have no effect on children's schooling.


Assuntos
Filho de Pais Incapacitados/educação , Doença Crônica/economia , Efeitos Psicossociais da Doença , Emprego/economia , Instituições Acadêmicas/economia , Desemprego/estatística & dados numéricos , Adolescente , Criança , Doença Crônica/epidemiologia , Escolaridade , Emprego/estatística & dados numéricos , Pai/estatística & dados numéricos , Feminino , Humanos , Renda , Análise dos Mínimos Quadrados , Modelos Lineares , Estudos Longitudinais , Masculino , Mães/estatística & dados numéricos , Instituições Acadêmicas/estatística & dados numéricos , Tanzânia/epidemiologia
8.
Psychol Med ; 42(1): 111-23, 2012 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-21733288

RESUMO

BACKGROUND: Offspring of patients with schizophrenia exhibit poorer school performance compared with offspring of non-schizophrenic parents. We aimed to elucidate the mechanisms behind this association. METHOD: We linked longitudinal national population registers in Sweden and compared school performance among offspring of schizophrenic parents with offspring of non-schizophrenic parents (1 439 215 individuals with final grades from compulsory school 1988-2006). To investigate the mechanisms, we studied offspring of schizophrenic patients and controls within the same extended families. We investigated genetic effects by stratifying analyses of parent-child associations according to genetic relatedness (half-cousins, full cousins and half-siblings). Environmental effects were investigated by comparing school performance of offspring of schizophrenic fathers and of schizophrenic mothers, respectively, and by stratifying the analyses according to environmental relatedness while controlling genetic relatedness (paternal and maternal half-cousins, paternal and maternal half-siblings). RESULTS: Offspring of parents with schizophrenia had poorer overall school performance than unrelated offspring of non-schizophrenic parents (-0.31 s.d.). Variability in genetic relatedness greatly moderated the strength of the within-family association (ß=-0.23 within exposure-discordant half-cousins, ß=-0.13 within exposure-discordant full cousins, ß=0.04 within exposure-discordant half-siblings), while no evidence was found that the environment affected offspring school performance. CONCLUSIONS: Genetic factors account for poorer school performance in children of parents with schizophrenia. This supports that cognitive deficits found in individuals with schizophrenia and their relatives might be genetically inherited. Early detection of prodromal signs and impaired functioning of offspring of patients with schizophrenia could lead to earlier and better tailored interventions.


Assuntos
Filho de Pais Incapacitados/estatística & dados numéricos , Transtornos Cognitivos/epidemiologia , Esquizofrenia/epidemiologia , Psicologia do Esquizofrênico , Adolescente , Criança , Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Transtornos Cognitivos/genética , Escolaridade , Métodos Epidemiológicos , Família , Saúde da Família , Feminino , Predisposição Genética para Doença , Humanos , Masculino , Pais/psicologia , Esquizofrenia/genética , Meio Social , Suécia/epidemiologia
9.
Int J Ment Health Nurs ; 21(1): 12-9, 2012 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-21819510

RESUMO

Young carers are a global phenomenon. The UK estimates it has in excess of 175 000 young carers, the onset of their caring role often occurring between 8 and 10 years of age. Of these, 17 000 are caring for a parent who has severe mental illness, a significant factor for children entering the health and social care system, as up to 60% experience mental health difficulties themselves. This paper reports on the outcome of a participatory project aimed at better understanding the needs of young people. A World Café event was hosted, bringing together those involved in promoting the mental health of young people in a partnership consortium. The event was led by young service users and carers. Important issues raised by the young carers were being excluded from being included; stuck in the here and now, ignoring the future; a hole in the net; and ensuring the hidden is on the agenda. The World Café gave the university the privilege of insight into what local young carers need to improve their mental health, and more importantly, how we can utilize our skills to help them achieve their goals.


Assuntos
Cuidadores/psicologia , Cuidadores/educação , Criança , Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Participação da Comunidade/psicologia , Pesquisa Participativa Baseada na Comunidade/métodos , Tomada de Decisões , Humanos , Saúde Mental/educação , Enfermagem Psiquiátrica/métodos , Reino Unido
10.
Soc Work Health Care ; 49(7): 630-46, 2010.
Artigo em Inglês | MEDLINE | ID: mdl-20711943

RESUMO

Given the prevalence and associated vulnerabilities of children of parents with a mental illness (COPMI) it is essential to develop appropriate interventions. While education is an important component in many interventions, little is known about what topics are covered, delivery mode, and the efficacy in meeting the needs of this target group. Eighteen facilitators responsible for delivering COPMI programs across Australia were interviewed, fifteen of whom include education about mental illness in their treatment programs. According to program facilitators, education about mental health was important because they believed that knowledge equates to power, and can be cathartic. Education chiefly consisted of signs, symptoms, and treatments of various mental illnesses. The dominant mode of delivery was small and large group discussion. When delivering education, there was some consideration for children's ages. However, there was less differentiation in programs according to the diagnosis of parents' mental illness. Clinical and research implications conclude the article.


Assuntos
Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Educação em Saúde/métodos , Transtornos Mentais/psicologia , Adaptação Psicológica , Adolescente , Austrália , Criança , Serviços Comunitários de Saúde Mental , Currículo , Humanos , Entrevistas como Assunto , Conhecimento , Relações Pais-Filho , Avaliação de Programas e Projetos de Saúde , Apoio Social , Gravação em Fita
11.
Child Abuse Negl ; 34(4): 253-61, 2010 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-20356626

RESUMO

OBJECTIVE: This study aims to evaluate the effectiveness of a parent training program in improving parenting practices, parents' feeling of self-efficacy and parents' perception of their child's behavior, implemented in a child protection service, with trained professionals from the agency acting as facilitators. METHOD: Thirty-five parents monitored in a child protection service for child neglecting behaviors participated either in the intervention group (n=26) or were on the waiting list (n=9). The program implemented (Incredible Years) lasted 16 weeks, was in a group format, and aimed: (1) to develop a harmonious parent-child relationship; (2) to support parents in learning and consistently applying effective practices; (3) to improve problem solving and communication skills within families and with teachers. A repeated measures design was used to test the program's effects on parenting practices, parents' feeling of self-efficacy, parents' perception of their child's behavior, and parents' satisfaction. Parents were tested twice, during a 19-week interval, before and after the parent training program. RESULTS: Analyses of variance comparing Intervention and Control groups with repeated measures (pre- and post-test measures) revealed that the program has a positive impact on parenting practices (harsh discipline, physical punishment, praise/incentive, appropriate discipline and positive verbal discipline) and parents' perception of their child's behavior (frequency of behavioral problems and number of problematic behaviors). No change on clear expectations from parents, or on parents' self-efficacy was observed. CONCLUSION: Though the implementation of an evidence-based parent training program by professionals in a child protection service presents specific challenges, results suggest that it can contribute to improvements in parenting practices and in parents' perception of their child's behavior.


Assuntos
Maus-Tratos Infantis/prevenção & controle , Transtornos do Comportamento Infantil/terapia , Proteção da Criança , Educação , Adulto , Criança , Maus-Tratos Infantis/psicologia , Transtornos do Comportamento Infantil/psicologia , Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Comunicação , Feminino , Humanos , Masculino , Relações Pais-Filho , Resolução de Problemas , Autoeficácia
12.
Nurs Stand ; 24(30): 20-1, 2010.
Artigo em Inglês | MEDLINE | ID: mdl-20425950

RESUMO

Motor neurone disease is a devastating diagnosis at any age, but for people with young children there is an added dimension. Now there is accessible information that can help.


Assuntos
Filho de Pais Incapacitados/educação , Educação em Saúde/organização & administração , Doença dos Neurônios Motores , Criança , Filho de Pais Incapacitados/psicologia , Humanos , Doença dos Neurônios Motores/psicologia , Enfermeiras Administradoras/psicologia , Materiais de Ensino
13.
Psychiatr Rehabil J ; 33(2): 133-41, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-19808209

RESUMO

OBJECTIVE: This study reports early findings of a still-developing Youth Education and Support (YES) pilot intervention of multifamily group psychoeducation for youth with a parent with a psychiatric illness. METHODS: Hypotheses predicted YES participants would increase pre-to-post: 1) Knowledge of psychiatric illness and recovery, and 2) Coping. A purposive sample of 17 youth, ages 10-16, participated in six lively, activity-focused, two-hour sessions within four groups facilitated by the PI and professionals employed within two public mental health agencies. Data revealed a significant increase in pre-to-post youth-reported knowledge (p= less than .001) and no significant change in overall coping. At post-intervention, youth reported significantly increased use of the coping skills of avoiding problems and relaxing, as indicated within these coping subscales. CONCLUSIONS: Study limitations merit interpretation caution. They are useful for future research, including development and testing of youth psychoeducation programs with longer interventions, more emphases on coping, parent-inclusion, and larger samples using randomized, experimental designs. Suggestions for research, practice, and policy are provided.


Assuntos
Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Terapia Familiar/métodos , Educação em Saúde/métodos , Transtornos Mentais/reabilitação , Psicoterapia de Grupo/métodos , Adaptação Psicológica , Adolescente , Criança , Conflito Familiar/psicologia , Humanos , Transtornos Mentais/psicologia , Avaliação de Processos e Resultados em Cuidados de Saúde , Projetos Piloto , Resolução de Problemas , Resiliência Psicológica , Apoio Social
14.
Issues Ment Health Nurs ; 30(11): 677-86, 2009 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-19874096

RESUMO

Uncertainty is an inherent part of most illness experiences and Alzheimer's disease in particular is fraught with uncertainties, especially for the family. In an investigation of sources of uncertainty, 33 adult children with a parent diagnosed with probable Alzheimer's disease were interviewed. Participants described medical, personal, and social sources of uncertainty related to their parent's diagnosis. This research contributes to literature on uncertainty management and addresses the specific illness experiences of families coping with uncertainty related to Alzheimer's disease. Recommendations are made for further research that focuses on the ways family members are affected by illness.


Assuntos
Adaptação Psicológica , Crianças Adultas/psicologia , Doença de Alzheimer , Cuidadores/psicologia , Filho de Pais Incapacitados/psicologia , Incerteza , Atividades Cotidianas/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Doença de Alzheimer/diagnóstico , Doença de Alzheimer/etiologia , Doença de Alzheimer/prevenção & controle , Doença de Alzheimer/psicologia , Atitude Frente a Saúde , Cuidadores/educação , Criança , Filho de Pais Incapacitados/educação , Barreiras de Comunicação , Feminino , Humanos , Institucionalização , Masculino , Pessoa de Meia-Idade , Meio-Oeste dos Estados Unidos , Pesquisa Metodológica em Enfermagem , Prognóstico , Papel (figurativo) , Inquéritos e Questionários
15.
Aust N Z J Psychiatry ; 42(12): 1041-50, 2008 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-19016092

RESUMO

OBJECTIVE: The purpose of the present study was to evaluate the effectiveness of a group psychosocial intervention for children (aged 12-18) of a parent with mental illness (copmi). METHOD: A treatment and waitlist-control design study with pre- and post-treatment, and 8 week follow up, was carried out. The treatment (n=27) and control (n=17) groups were compared on three groups of dependent variables: intervention targets (mental health literacy, connectedness, coping strategies), adjustment (depression, life satisfaction, prosocial behaviour, emotional/behavioural difficulties), and caregiving experiences. RESULTS: Group comparisons failed to show statistically significant intervention effects, but reliable clinical change analyses suggested that compared to the control group, more intervention participants had clinically significant improvements in mental health literacy, depression, and life satisfaction. These treatment gains were maintained 8 weeks after treatment. Participant satisfaction data supported these treatment gains. CONCLUSIONS: Given study limitations and the modest support for intervention effectiveness it is important that this and other similar interventions should continue to be revised and undergo rigorous evaluation.


Assuntos
Filho de Pais Incapacitados/psicologia , Transtornos Mentais/psicologia , Resiliência Psicológica , Adaptação Psicológica , Adolescente , Transtorno Bipolar/psicologia , Cuidadores/psicologia , Criança , Transtornos Reativos da Criança/psicologia , Transtornos Reativos da Criança/terapia , Filho de Pais Incapacitados/educação , Comorbidade , Transtorno Depressivo Maior/psicologia , Feminino , Educação em Saúde , Humanos , Masculino , Grupo Associado , Psicoterapia de Grupo , Transtornos Psicóticos/psicologia , Psicologia do Esquizofrênico , Ajustamento Social , Isolamento Social
17.
AIDS Educ Prev ; 19(5): 383-95, 2007 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-17967109

RESUMO

We examined whether orphaned and fostered children and children of HIV-infected parents are disadvantaged in schooling, nutrition, and health care. We analyzed data on 2,756 children aged 0-4 years and 4,172 children aged 6-14 years included in the 2003 Kenya Demographic and Health Survey, with linked anonymous HIV testing, using multivariate logistic regression. Results indicate that orphans, fostered children, and children of HIV-infected parents are significantly less likely to attend school than non-orphaned/non-fostered children of HIV-negative parents. Children of HIV-infected parents are more likely to be underweight and wasted, and less likely to receive medical care for ARI and diarrhea. Children of HIV-negative single mothers are also disadvantaged on most indicators. The findings highlight the need to expand child welfare programs to include not only orphans but also fostered children, children of single mothers, and children of HIV-infected parents, who tend to be equally, if not more, disadvantaged.


Assuntos
Proteção da Criança/estatística & dados numéricos , Filho de Pais Incapacitados/estatística & dados numéricos , Crianças Órfãs/estatística & dados numéricos , Cuidados no Lar de Adoção , Infecções por HIV , Disparidades nos Níveis de Saúde , Populações Vulneráveis , Adolescente , Adulto , Criança , Filho de Pais Incapacitados/educação , Crianças Órfãs/educação , Pré-Escolar , Escolaridade , Características da Família , Feminino , Humanos , Lactente , Recém-Nascido , Quênia/epidemiologia , Modelos Logísticos , Masculino , Pessoa de Meia-Idade , Análise Multivariada , Estado Nutricional
18.
Home Healthc Nurse ; 25(8): 534-6, 2007 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-17828009

RESUMO

Anne's mother died of cancer last year when Anne was 13 years old. Shortly thereafter her brother, Andy, received a diagnosis of stage IV cancer. Anne and her dad, Mr. H., struggled to provide care for Andy while they at the same time grieved the death of her mother. Mr. H. worries about how to communicate with Anne. He notes that Anne was always closer to her mother. He struggles to establish a relationship with Anne and to support her through this difficult time. Bert's dad is terminally ill with liver cancer. Bert is 16 years old. His dad is constantly in and out of the hospital. Currently at home, he requires assistance with all activities of daily living. Health professionals visit the home on a regular basis. Mrs. N., Bert's mother, reports that Bert's grades have dropped and he avoids being in the home. She wonders how to help him while identifying that it is easier to focus on her husband when Bert is not at home.


Assuntos
Filho de Pais Incapacitados/psicologia , Enfermagem em Saúde Comunitária/métodos , Serviços de Assistência Domiciliar , Cuidados Paliativos na Terminalidade da Vida , Papel do Profissional de Enfermagem/psicologia , Psicologia do Adolescente , Adaptação Psicológica , Adolescente , Atitude Frente a Saúde , Filho de Pais Incapacitados/educação , Comunicação , Saúde da Família , Pesar , Comportamento de Ajuda , Cuidados Paliativos na Terminalidade da Vida/métodos , Cuidados Paliativos na Terminalidade da Vida/psicologia , Humanos , Serviços de Informação , Internet , Pais/psicologia , Apoio Social
19.
Epilepsy Behav ; 10(1): 44-8, 2007 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-17126082

RESUMO

BACKGROUND: It is known that most adult patients with epilepsy often have poor knowledge of their disorder, treatment options, and social and vocational consequences, despite the huge amount of information available. Being pressed for time, health care professionals often are not able to provide the repetitive counseling and instruction necessary to address epilepsy care adequately. Therefore educational programs are considered extremely important in filling the gap. METHOD: For German-speaking countries, two educational programs called famoses, modulares Schulungsprogramm Epilepsie fur Familien [modular service package epilepsy for families], were developed by a multidisciplinary group of neuropediatricians, psychologists, social workers, and educators. The aims of the famoses programs are to improve children's and parents' knowledge about epilepsy and to help patients of childhood age and their parents achieve a better understanding of their disease, gain more self-confidence, and reduce specific fears regarding epilepsy. famoses comprises two different educational programs: famoses for kids with epilepsy within the developmental period of ages 7 to 13, and famoses for parents or caretakers. The programs are designed for interactive small-group education. RESULTS: The child-centered educational program is based on a fictional story: The children are sailors on a virtual cruise, sailing from island to island, accompanied by educated trainers. On each island there is something new to discover about epilepsy. The parent (and caretaker)-centered educational program covers different topics-overview and content of the program, basic knowledge, diagnostics, therapy, prognosis and development, and living with epilepsy-within six modules. The program was implemented in Germany and Switzerland in the spring of 2005 and is now operating in different epilepsy centers. CONCLUSION: Within comprehensive therapeutic management of epilepsy, educational programs for patients, and for parents (caretakers) of children with epilepsy, are considered to be extremely important. Such educational programs have two main goals: to increase knowledge about the disorder, and to strengthen the patients' responsibility for themselves, with the consequence of living with as few limitations as possible. famoses is an effective component of this comprehensive care. The program has been operating successfully in different epilepsy centers in Germany and Switzerland since the spring of 2005.


Assuntos
Filho de Pais Incapacitados/educação , Epilepsia/psicologia , Epilepsia/reabilitação , Pais , Educação de Pacientes como Assunto , Adolescente , Adulto , Atitude Frente a Saúde , Criança , Feminino , Alemanha , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Inquéritos e Questionários , Suíça
20.
Int J Palliat Nurs ; 13(12): 590-7, 2007 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-18399384

RESUMO

A small exploratory study was conducted to identify the psychosocial needs of children facing the death and subsequent bereavement of a parent from cancer. The focus was on the palliative phase of care through the bereavement period with the aim of identifying the best way forward in further developing a community-based service for children in Fife. Part one selectively reviewed the literature related to children's and families' needs when facing and dealing with the death of a parent, and described. Part two presents the results and reports the issues which will be considered as a basis for future service development.


Assuntos
Luto , Serviços de Saúde da Criança/organização & administração , Filho de Pais Incapacitados , Serviços de Saúde Comunitária/organização & administração , Determinação de Necessidades de Cuidados de Saúde/organização & administração , Neoplasias/psicologia , Adaptação Psicológica , Adolescente , Adulto , Atitude Frente a Morte , Atitude Frente a Saúde , Criança , Filho de Pais Incapacitados/educação , Filho de Pais Incapacitados/psicologia , Comunicação , Feminino , Grupos Focais , Humanos , Acontecimentos que Mudam a Vida , Masculino , Pesquisa Metodológica em Enfermagem , Relações Pais-Filho , Desenvolvimento de Programas , Psicologia da Criança , Estudos Retrospectivos , Escócia , Apoio Social
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